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Engaging Matt & Family
For family members, confronting each new day took a strong shot of willpower to not linger in the split universe of beautiful sunshine and better days outside, which belied what lay inside, and to persuade ourselves to enter the shadows of the hospital and walk the long hallway to face off with another day. Upon entering Matt’s room, we began with social graces. A greeting and a question, “How are you today?” Followed by silence, no indication that soundwaves were vibrating the air or his eardrums, a kiss, a one-way hug, a rundown of our day, the weather, and queries about his day. There were no answers yet—but someday there would. I liked to think the rhythm of familiar voices resonated within and flamed the embers of his life. We wanted him to know he was part of a family, so we maintained the practice of including him in our conversations, and perhaps he heard and took in more than we realized. It was difficult, heartbreaking even, this monolog with a ghost, overlaid by a marauding dialogue of fear and doubt determined to tear down any façade of hopefulness or courage.
We filled the void by reading Harry Potter and commenting about aspects of the book and the corresponding movie series or recalling when his sister and friend were among the groupies outside a local bookstore for the final book release. I remember how excited I was the evening Matt helped to hold the book up as I read. Shortly after that, when handed a get-well card, he pulled it out of the envelope, manipulated it to hold it upright, and scanned it while I read the content. Matt regularly received cards of encouragement, notably a year’s worth from his Aunt Sue and Joan from church. We pinned the many cards to the corkboard—a rainbow of colors and words of immeasurable comfort overflowing with love.
By the third week of May, the fortified barricade ensconcing his cognition showed signs of weakening.
For so long, relegated to the bench, a passive onlooker, the tides shifted slightly toward warming up to take the field. To grab his attention, we introduced childhood memories and previous interests. We encouraged him to draw, write, color, and doodle on a Magna-Doodle and old Etch-a-Sketch. His efforts were similar to a child’s. One special day, with paper and a marker, Matt instantly began to scribble—a light bulb moment—a spark of recognition connecting the present to childhood memories and a link to the inter-reaches of his cerebrum and one more crack in the armor of his TBI. He persisted long enough to create four beautiful works of “art” and brought smiles of joy. His Aunt Debbie thought she could dial it up a notch and brought materials for Matt to make a birthday card for his sister-in-law, an idea that quickly fizzled. Everything was a process of trial and error, failures alongside successes.
What abilities Matt could and could not or would not do didn’t always jive. Uno cards and blocks were used creatively, integrating arm movement, dexterity, and cognitive awareness. If offered a card, he could reach for it, using his left hand, and place it on the correct stack by color. Yet, he might push blocks around instead of stacking them and disregard appeals to put them into a bag. And then, out of the blue, he might help zip the bag closed or place cards in his right hand to hold. On closer inspection, at least in some cases, the difference could be explained by what came automatically and subconsciously compared to consciously and on-demand. Regardless of his questionable cognitive function, it seemed that a loose wire occasionally made contact and fired.
“One, two, three, four, I declare a thumb war.” Mike reestablished this childhood game—it took on new meaning, first with family and then with staff. Playing with his dominant left hand against all of the righties, with his unusually long thumb, was to his advantage. It quickly became Matt’s personal goal to beat opponents, and he was declared June’s Thumb War Champ after besting one particular female LPN. Daily, as she passed meds, she challenged Matt to a duel, no-holds-bar. Matt was all business, relishing every moment, his one claim to fame, a feather in his cap. A month later, the tide shifted in their favor as he fought to win right-handed. It was a delight, even inspiring, to observe their playful spirit and the personal fist-pump that Mike and Matt perfected, pseudo-Big Hero 6 style—wiggling fingers and all, as they pulled apart.
At long last, a hug. Every day, I had leaned over his chair and pulled his left arm around my back to hug me, yet it had laid there like a limp, wet rag. I repeatedly asked him to hug me or pat my back. This time, Matt not only complied but softly rubbed my back. Through this personal touch—because his absent words could not—we mutually affirmed our love in a tangible way, which was a significant breakthrough for Matt. The family was thrilled and religiously collected hugs. Like an electric car plugged in, hugs boosted our energy reserves and conviction to persevere.
As Matt became more attentive, he and his dad watched sports on TV in the afternoon, such as the Yankees and the World Cup soccer championship. Mike identified that evening hours were long and lonely and made it his responsibility to request a portable DVD player and to line up movies for Matt to watch alone. Before departing for the night, we’d cued it up—leaving Matt contentedly occupied—lost in a story other than his own for several hours.
It was heartwarming when our core family visited for Memorial Day. The reinforcement was appreciated and added a different flavor to Matt’s environment. Siblings watched and cheered the subtle improvements in writing, drawing, and stacking Uno cards, and they eagerly took him on in Thumb Wars. Sometimes, they read to or prodded him to move his left arm or to hold their hand. Mainly, they sought to be near him, in his presence, for assurance and to confirm that he was better than when last together. It was sad to see them go, and before they did, each stocked up on hugs from Matt and, equally importantly, from us before hitting the road.
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